Polverini Dear President, my name is Melanie
Fazzino, and together with other parents of children in "load" at the Saint Lucia IRCCS of Rome, during the His visits to the Foundation, I had the opportunity to discuss with you the condition of insecurity and uncertainty that we are experiencing the situation of deep crisis in the hospital.
On 25 February this year, after countless futile negotiations with the old regional council, the Ministry of Health held a meeting between a small delegation of S. Lucia, among whom were some parents of children of the former service. art. 26, and the Minister, the Hon. Ferruccio Fazio, with the Commissioner to Acta prof. Guzzanti. The minister noted the serious economic situation facing the hospital and the additional problem that concerns the service of extra rehabilitation hospital, which sees about 100 people, mostly children, at risk of dismissal for failure by the Lazio Region, the formalization of the transition from semi to non-residential users, has taken a firm commitment to the immediate conversion through the intervention of Professor. Guzzanti, these places and referred the final resolution of the issue of economic foundation installation of the new regional government.
In subsequent meetings at St. Lucia, she too has repeatedly reassured us, making sure that the Minister was acting to resolve the situation.
Therefore, we were quite dismayed to learn that,
1. Despite the assurances and promises of the Minister and Professor. Guzzanti about the places mentioned have not been converted, which would, once again at risk of dismissal of our children;
2. For the extra service hospital art. 26 it was made for 2009, a heavy riduzione del budget;
3. Con la recente delibera n. 38 del 31 maggio 2010 è stato introdotto un tetto per le assenze, superato il quale i pazienti dovrebbero essere dimessi dal progetto di riabilitazione.
Noi genitori ci chiediamo: e in caso di ricoveri, interventi gravi o malattie, secondo Lei, cosa dovremmo fare? Perdere il progetto e iniziare nuovamente l’iter delle lunghe liste di attesa? Sempre nel contesto della gestione del progetto, inoltre, nel caso di idrochinesi terapia, la commissione, che si è occupata della predisposizione di tale decreto, non ha neanche contemplato i casi in cui un paziente, pur essendo in ottima salute, è costretto, suo malgrado, a rinunciare alla prestazione, ad es. per ferite, fungi, ear infections.
Dear President, as you well know, in Lazio there are alternatives to S. Lucia. No other facility is equipped with an efficient outpatient service and quality as that of S. Lucia, for the multidisciplinary management of over 150 children: the said decree, in addition to not allow to escape the long waiting lists, which endangers the health of our children and the serenity of our parents.
Therefore, in light of new revelations, we ask for a meeting to discuss the recent actions in the hope of seeking a solution satisfactory to both parties.
Pending receipt of any notice, we send our best regards.
Il coordinamento dei genitori del servizio extra ospedaliero ex art. 26
Melania Fazzino – tel. 3496600569 - email melif@libero.it
Annarita Di Santo – tel 3478525059 – email annarita.disanto@tesoro.it
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